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Helpful Links to Resources about Baby Flat Head Syndrome caused by positional plagiocephaly and brachycephaly

Repositioning Information

Information about positional plagiocephaly, including how to reposition your baby and some tummy time ideas.

http://www.childrensmn.org/Manuals/PFS/Condill/042534.pdf

 

Deformational Plagiocephaly in Children

Summary of a Dutch and an Australian study showing progress of children with positional plagiocephaly up to 4 years old, with and without helmets.

http://pediatrics.jwatch.org/cgi/content/full/2010/1020/1

 

Head Shapes – Normal, Plagiocephaly, Brachycephaly, Scaphocephaly

http://www.starbandkids.com/a-simple-test

 

Positioning and Stretches for Torticollis

STRETCHES AND POSITIONING FOR RIGHT TORTICOLLIS

http://www.orthoseek.com/articles/ifs-right.html

STRETCHES AND POSITIONING FOR LEFT TORTICOLLIS

http://www.orthoseek.com/articles/ifs-left.html

 

Severity Scales

Children’s Hospital of Atlanta plagiocephaly severity scale:

http://www.scop.net/pdf’s/Plagio_Severity.pdf

Capital OP brachycephaly/scaphocephaly severity index:

http://www.capitaloandp.com/pdf/Brachy_severity_scale.pdf

General

http://www.cpcjournal.org/doi/pdf/10.1597/1545-1569(1998)035%3C0204:TDDOAH%3E2.3.CO;2

http://www.cranialtech.com/

http://www.mayoclinic.com/health/healthy-baby/PR00043/NSECTIONGROUP=2

http://health.usnews.com/health-news/news/articles/2012/04/27/more-babies-today-have-irregular-head-shape-expert

https://www.aans.org/Patient%20Information/Conditions%20and%20Treatments/Positional%20Molding%20Helmet%20Band%20Therapy.aspx

http://www.sciencedaily.com/releases/2010/02/100215081730.htm

http://www.mayoclinic.com/health/craniosynostosis/DS00959/DSECTION=symptoms

http://www.ninds.nih.gov/disorders/cephalic_disorders/detail_cephalic_disorders.htm

http://steeperclinic.com/plagiocephaly/what_is_deformational_plagiocephaly

 

Insurance Information

https://www.excellusbcbs.com/wps/wcm/connect/21b8d2004e8eb7b99623bfe420b83c88/mp%2Bcran_orth%2Bmpc3%2B11.pdf?MOD=AJPERES

http://www.aetna.com/cpb/medical/data/300_399/0379.html

https://www.wellcare.com/WCAssets/corporate/assets/HS009_Cranial_Remodeling_with_Orthotic_Devices.pdf

http://www.cigna.com/assets/docs/health-care-professionals/coverage_positions/mm_0056_coveragepositioncriteria_cranial_orthotic_devices.pdf

https://www.oxhp.com/secure/policy/plagiocephaly_and_craniosynostosis_treatment.pdf

http://abcnews.go.com/Health/WellnessNews/baby-helmets-misshapen-heads-covered-military-insurance/story?id=9763312#.UIlxmG_2WJQ

http://www.alexandrasphate.org/insurance_help.html

https://www.bcidaho.com/providers/medical_policies/dme/mp_10111.asp

https://www.healthnet.com/static/general/unprotected/pdfs/national/policies/Plagiocephaly_Treatments_Mar_12.pdf

SIDS and the Back to Sleep Campaign

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002533/

http://www.nichd.nih.gov/health/topics/infantcare/conditioninfo/Pages/sids.aspx

http://www.cdc.gov/sids/

http://www.sids.org/nprevent.htm

http://www.nichd.nih.gov/sids/

http://en.wikipedia.org/wiki/Back_to_Sleep

http://www.sidscenter.org/Statistics.html

http://dccwww.bumc.bu.edu/ChimeNisp/Tables_in_PDF/NISP%201992-2009%20The%20usual%20sleep%20position.pdf

http://www.nichd.nih.gov/news/releases/sidsbrain.cfm?renderforprint=1

http://pediatrics.aappublications.org/content/116/5/e716.abstract

 

Changing Times

http://bucketoftoys.com/understanding-the-developmental-benefits-of-an-activity-play-mat/

http://www.jollyjumper.com/history

http://www.gracobaby.com/about/Pages/AboutGraco.aspx

http://www.thevirtualdimemuseum.com/2009/03/victorian-baby-swings.html

http://www.theatlantic.com/health/archive/2012/01/the-risks-of-child-car-seats/252006/

http://www.newsomelaw.com/blog/2012/02/17/not-so-obvious-car-seat-dangers-put-children-risk

http://boston.cbslocal.com/2011/12/13/little-known-seat-belt-danger-could-claim-life-of-child-in-seconds/

http://usatoday30.usatoday.com/news/health/2009-10-19-car-seats_N.htm

http://articles.mercola.com/sites/articles/archive/2011/08/25/the-hidden-danger-in-your-car-seat.aspx

http://pediatrics.aappublications.org/content/129/3/548.abstract

http://www.unicef.org.uk/BabyFriendly/News-and-Research/Research/Bed-sharing-and-infant-sleep/Bed-sharing-is-common-and-may-help-breastfeeding/

http://stokes.chop.edu/programs/injury/files/PCPS_Reports/CPSIR_3.pdf

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2901910/

http://pediatrics.aappublications.org/content/128/5/e1341.full

http://www.academia.edu/278283/Artificial_Cranial_Modification_in_the_Ancient_World

http://www.ncbi.nlm.nih.gov/pubmed/7501099

http://www.ncbi.nlm.nih.gov/pubmed/17538389

http://smilesforkids.missouri.edu/common_conditions/plagiocephaly.php

http://www.babysensory.com/downloads/ConfinementEN.pdf

http://www.bobafamily.com/research/strollers-baby-carriers-and-infant-stress/

http://drformoms.com/sites/default/files/content/files/SPINAL%20SAFETY%20FOR%20YOUR%20BABY.pdf

http://www.bjj.boneandjoint.org.uk/content/54-B/1/4.full.pdf

http://onlinelibrary.wiley.com/doi/10.1111/j.1556-4029.2006.00070.x/abstract?deniedAccessCustomisedMessage=&userIsAuthenticated=false

http://journals.lww.com/jpojournal/Abstract/2003/07000/Car_Seats,_Infant_Carriers,_and_Swings__Their_Role.10.aspx

http://www.futureofchildren.org/futureofchildren/publications/docs/10_01_01.pdf

http://publichealth.lacounty.gov/ivpp/pdf_reports/Infantile%20Positional%20Occipital%20Plagiocephaly%20from%20Child%20Safety%20Seats.pdf

http://www.ncbi.nlm.nih.gov/pubmed/9122552

http://www.ncbi.nlm.nih.gov/pubmed/15911459

http://www.ncbi.nlm.nih.gov/pubmed/18046747

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3057899/

http://www.tau.ac.il/~sadeh/clinic/Mindell%202010%20cross-cultural%20infant%20sleep.pdf

http://books.google.com.mx/books?hl=en&lr=&id=wAcfoVK23XcC&oi=fnd&pg=PA241&dq=cultural+variations+infant+sleep+habits&ots=VgXRGDHzEG&sig=Yyy4NxBU7Xp0FFsqNwn7Wre2U5Q&redir_esc=y#v=onepage&q=cultural%20variations%20infant%20sleep%20habits&f=false

http://onlinelibrary.wiley.com/doi/10.1111/j.1479-8425.2004.00147.x/abstract;jsessionid=1B5DBCDDDBB5CA60BAB09902CCFF1BC4.d04t01?deniedAccessCustomisedMessage=&userIsAuthenticated=false

http://www.pediatricsdigest.mobi/content/115/Supplement_1/204.full

http://www.pediatricsdigest.mobi/content/100/5/841.full

http://www.nd.edu/~jmckenn1/oldsite06/culturalarticle.html

 

Plagiocephaly

http://childrenshospital.org/clinicalservices/Site1935/Documents/b_plagio_041411_web.pdf

http://www.plagiocephalyflathead.com/measure_plagiocephaly.php

http://avhospital.org/Services/PhysicalAndOccupationalTherapy/OurServices/Pages/CongenitalTorticollisAndPlagiocephalyTherapy.aspx

http://www.plagiosupport.org/links.htm

http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/craniofacial/dfrmplag.html

http://pediatrics.aappublications.org/content/119/2/e408.full

https://www.aans.org/en/Patient%20Information/Conditions%20and%20Treatments/Positional%20Plagiocephaly.aspx

http://www.ncbi.nlm.nih.gov/pubmed/22241785

http://www.hanger.com/orthotics/services/plagiocephaly/pages/plagiocephalyfaq.aspx

https://researchspace.auckland.ac.nz/handle/2292/3122

http://www.flatheadprevention.org/about-flathead-syndrome/

http://kidshealth.org/parent/general/sleep/positional_plagiocephaly.html

 

Brachycephaly

http://neuraltubedefect.com/2011/06/30/brachycephaly/

http://www.oandp.org/publications/jop/2007/2007-34.asp

http://people.ucalgary.ca/~wainer/Handouts/When%20_your_Baby-has-Brachycephaly.pdf

http://www.plagiocephalyflathead.com/measure_brachycephaly.php

http://www.ohsu.edu/xd/health/services/doernbecher/programs-services/brachycephaly.cfm

https://researchspace.auckland.ac.nz/handle/2292/3122

http://www.flatheadprevention.org/about-flathead-syndrome/

http://www.ncbi.nlm.nih.gov/pubmed/9415467

http://en.wikipedia.org/wiki/Brachycephaly

http://en.diagnosispro.com/differential_diagnosis-for/brachycephaly-causes/12310-154.html

 

Scaphocephaly

http://www.plagiocephalyflathead.com/measure_brachycephaly.php

http://cranialcenter.com/plagiocephaly/scaphocephaly/

http://www.ncbi.nlm.nih.gov/pubmed/16206966

http://www.scaphocephaly.info/

http://paxil-birth-defect.com/2011/06/01/sagittal-synostosis-scaphocephaly/

http://jmg.bmj.com/content/42/8/656.full

 

Torticollis

http://physical-therapy.advanceweb.com/Features/Articles/Tackling-Torticollis.aspx

http://www.cyberpt.com/torticollis.asp

http://mmidocs.com/pdfs/torticollis_and_physicaltherapy.pdf

http://www.pedisurg.com/pteduc/torticollis.htm

http://igitur-archive.library.uu.nl/dissertations/2007-0427-201018/c3.pdf

http://www.childrenshospital.org/az/Site3351/mainpageS3351P1.html

http://www.ncbi.nlm.nih.gov/pubmed/16958498

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001757/

http://www.oandp.org/jpo/library/2004_04S_018.asp

http://kidshealth.org/parent/medical/bones/torticollis.html

http://www.babycenter.com/0_torticollis_10912.bc

http://www.webmd.com/parenting/baby/tc/congenital-torticollis-topic-overview

 

Craniosynostosis

http://www.aans.org/Patient%20Information/Conditions%20and%20Treatments/Craniosynostosis%20and%20Craniofacial%20Disorders.aspx

http://www.faces-cranio.org/

http://acraniosynostosislife.blogspot.mx/p/types-of-surgery-for-craniosynostosis.html

http://health.nytimes.com/health/guides/disease/craniosynostosis/overview.html

http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/pediatric_neurosurgery/conditions/craniosynostosis/diagnosis.html

http://www.gosh.nhs.uk/medical-conditions/search-for-medical-conditions/craniosynostosis/craniosynostosis-information/

http://www.medicalnewstoday.com/articles/223128.php

http://en.wikipedia.org/wiki/Craniosynostosis

http://www.aafp.org/afp/2004/0615/p2863.html

http://www.chw.org/display/PPF/DocID/21810/router.asp

http://www.nhs.uk/conditions/Craniosynostosis/Pages/Introduction.aspx

http://www.mayoclinic.com/health/craniosynostosis/DS00959

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002557/

http://emedicine.medscape.com/article/1175957-overview#a0199

 

Treatment of Bracycephaly, Plagiocephaly and Scaphocephaly

http://www.alexandrasphate.org/helmets_cro.html

http://bostonbrace.com/Content/Boston_Band_for_Plagiocephaly.asp

http://bostonbrace.com/Content/Boston_Band_Cranial_Remolding_Guider_for_Medical_Professionals.asp

http://www.orthomerica.com/pdf/starfam.pdf

http://bostonbrace.com/Content/Boston_Band_Cranial_Remolding_Guide_for_Parents.asp

http://www.hanger.com/orthotics/services/plagiocephaly/Pages/default.aspx

http://www.plagiocefalia.com/eng/tractament/activePassive.html

http://www.cappskids.org/upload/Neurodevelopmental%20implications%20%2010-05.pdf

http://www.orthomerica.com/pdf/cranialwp.pdf

http://www.cpcjournal.org/doi/abs/10.1597/1545-1569%281999%29036%3C0127%3AIOERAT%3E2.3.CO%3B2

http://www.acpoc.org/library/2007_03_005.asp

http://www.cranioform.de/uploads/media/Xia2008_05.pdf

http://igitur-archive.library.uu.nl/dissertations/2007-0427-201018/c7.pdf

http://www.plagiocephaly.info/peoplemag/default.htm

http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/positional-plagiocephaly-treatment/

http://www.springerlink.com/content/b7185511630w035j/

http://www.bostonbrace.com/images/customer-files/PositionalPlagiocephaly.pdf

http://www.ncbi.nlm.nih.gov/pubmed/18216665

http://pediatrics.about.com/cs/conditions/a/plagiocephaly.htm

http://www.ncbi.nlm.nih.gov/pubmed/21788840

http://www.yalesurgery.org/plastics/care/cranio/positional.aspx

http://www.ncbi.nlm.nih.gov/pubmed/18678803

http://www.cps.ca/en/documents/position/positional-plagiocephaly

http://www.ncbi.nlm.nih.gov/pubmed/15689920

http://www.plagiocephalycare.org.uk/board/index.php?forumID=1&ID=17015&title=Message%20from%20a%20mum%20with%20untreated%20plagiocephaly

http://www.oandp.org/jpo/library/2003_02_037.asp

http://ajrccm.atsjournals.org/content/163/4/947.full

http://www.tummytime.com.au/plagiocephaly

http://www.nichd.nih.gov/health/topics/Tummy_Time.cfm

http://www.webmd.com/parenting/baby/sleep-10/tummy-time

http://www.gillettechildrens.org/fileupload/Vol14No3.pdf

http://www.apta.org/Media/Releases/Consumer/2008/8/6/

http://ajot.aotapress.net/content/65/1/101.short

http://www.babycenter.com/0_tummy-time-how-to-help-your-baby-get-comfortable-on-his-bell_1439985.bc?page=2

http://www.disabled-world.com/disability/children/ositional-plagiocephaly.php

http://www.plagiosupport.org/repotech.htm

http://www.bcchildrens.ca/NR/rdonlyres/BF316617-733C-49AB-8E35-0C403B698484/30103/BCCH034PlagiocephalyCliniciansGuideWeb1.pdf

http://www.smw.ch/docs/pdf200x/2007/25/smw-11702.PDF

http://www.plagiocephaly.info/resources/pdf/Yu_etal2004.pdf

http://www.coleopc.com/documents/recommendations.pdf

 

Reaching Out for Help

On-Line Support Groups, Blogs and Forums

http://www.netmums.com/coffeehouse/netmums-chat-clubs-795/other-netmums-clubs-95/273726-babies-flat-head-support-group.html

http://community.babycentre.co.uk/groups/a106515/plagiocephaly_flat_head_syndrome_support

http://www.plagiocephalycare.org.uk/

http://www.plagiosupport.org/

http://www.dailystrength.org/c/Craniosynostosis-Plagiocephaly/support-group

http://momofoneanddone.wordpress.com/little-mans-brachycephaly/

http://brachycephaly.wordpress.com/

http://www.cranialtech.com/index.php?option=com_content&view=article&id=95:online-support-groups&catid=87:meet-other-parents&Itemid=90

http://www.craniochat.org/brachycephaly.html

http://health.groups.yahoo.com/group/AllAboutPlagiocephaly/

http://community.babycenter.com/groups/a52465/plagiocephaly_support

http://www.facebook.com/Plagiocephaly.Awareness.Support

http://www.earlyinterventionsupport.com/parentingtips/specialneeds/torticollis.aspx

http://www.torticolliskids.org/

 

Organizations and Resources

http://www.ncbi.nlm.nih.gov/sites/ga?disorder=SCAPHOCEPHALY

http://www.plagiocephaly.info/

http://brachycephaly.wordpress.com/2010/01/04/groups-forums-and-organizations-on-brachycephalyplagiocephaly/

http://www.headstart4babies.org/useful-links/

http://craniocarebears.org/what-is-craniosynostosis/

http://www.bellaonline.com/articles/art55442.asp

http://www.facesofchildren.org/Craniosynostosis

http://www.jorgeposadafoundation.org/craniosynostosis/

http://www.aans.org/en.aspx

http://www.shareasmilefoundation.org/index.php

http://www.alexandrasphate.org

http://plagiocephalyawareness.org/home-eng.htm