Grants and other funding options for treating flat head syndrome
If you have already filed an appeal or multiple appeals, and continue to be rejected, there are other funding strategies you can pursue. Some parents contact local media outlets and ask them to cover their story. Others use sites like Wish Upon a Hero or Care2 to raise money for their child’s treatment. Another major funding source you can turn to are grants.
Unless you work for a non-profit or a university, you might never have come in contact with grant-providing organizations, and probably don’t know how to begin filing a grant proposal. Don’t worry, it’s not that hard! Make sure you have a copy, if not the original, of all paper work and medical records surrounding your child’s case. That means insurance documents, diagnosis, treatment invoices, estimates from the helmet or band provider of your choice, and anything else you think might be relevant. Grant providers often want all, or at least most, of this information. Many will also ask you for your child’s story and for a little information about who your child is – their personality, likes, dislikes, and why they deserve the helmet or band.
For help with travel expenses, Air Care Alliance and the National Patient Travel Center may be able to help.
Military families may be able to obtain special grants for helmets and bands through their local Military Relief Organizations.
Despite their reputation for not being the best insurance company to have when you start cranial orthotic therapy, United Healthcare has a pretty nice grant program. Qualifying families can receive up to $5,000 under this program.
Other Funding and Care Options
One non-traditional option that can help to cover healthcare costs is Care Credit. The company provides health care loans at a low interest for families that might not be able to afford treatment otherwise.
For families planning on using Orthomerica’s products, but who don’t have the money for treatment, the Share a Smile Foundation may be an option. The group provides craniofacial treatment for deeply discounted rates, and is located in the Children’s Medical Center of Dallas in Dallas, TX.
Crowdfunding is another option to raise some or all of the money needed for a helmet. You can set up your own donation site to receive donations via crowdfunding websites like this one:
If you know of any other grants or funding options for treating babies who need helmet therapy, please share them in the comments below.